HSE refuses to fund
A young man is fighting for his life because the HSE has refused to fund a trip to New York for a “one last chance” t
After three years of battling it in Ireland, and the cancer showing further progression despite surgery in 2011 and 2012, James’ doctors recommended that he attempt to gain admission to Sloan-Kettering.
They are operating a clinical trial, testing a approach to treating James’ disease.
The treatment that could save James’ life would cost €80,000.
A HSE spokesperson said: “The HSE Treatment Scheme, as provided under EU Regulations in conjunction with the Department of Health and Children guidelines, allows access to proven treatment in the public healthcare system of an EU member state for approved patients.”
James’s mother, Geraldine Gill, said: “They told us they don’t provide funding for treatment on trial.
“But we have tried everything that is available in Ireland. James has just this one last chance."
The HSE's own protocol for expenditure on treatment for seriously ill patients is that expenditure on treatment is justified if there is a reasonable chance that the patient will live for another year with a reasonable quality of life.
I believe this protocol actually takes priority over their policy on not funding clinical trials.
I wonder has it in this instance?